About
About The Research Project
Please click on the sub headings below to find out more about the PErson Centred Cancer Screening Services (peccs) study.
What is the full title of the study?
The full title of the study is: Identifying the barriers and facilitators for people with severe mental illness and/or learning disabilities for PErson Centred Cancer Screening services (peccs)
Lay summary of the study
If cancer is found early, the person may have a better chance of survival. In the United Kingdom there are three cancer screening programmes aim to identify cervical, breast and bowel cancer. People with severe mental Illness and people with learning disabilities are less likely, than other people, to attend cancer screening programmes. This current study wants to find out what influences the decisions of people with severe mental Illness to take part in the cancer screening programmes. We will then compare these results with what we already know from other research with people with learning disabilities and see if the results are the same.
This will be addressed by:
1) A review of research that has already been completed to find what are the known factors that influences the decision making and uptake of people with severe mental illness to cervical, breast and colorectal cancer screening.
2) Conducting interviews with up to 36 people with severe mental illness about their perceptions of cancer screening, and/or their experiences of attending cancer screening.
3) Identify any similar barriers, and common facilitators, that influence decision making and uptake of people with severe mental illness and people with learning disabilities to cancer screening. This will identify group specific factors, and factors that are distinct to each group.
4) Developing a plan, to conduct a future research study to further understand how the recommendations could be implemented into practice.
It is hoped that the research will help identify ways in which the screening programmes can be more person centred based on the needs and preferences of people with severe mental illness and people with learning disabilities, which may then lead to a greater uptake in cancer screening.
This will be addressed by:
1) A review of research that has already been completed to find what are the known factors that influences the decision making and uptake of people with severe mental illness to cervical, breast and colorectal cancer screening.
2) Conducting interviews with up to 36 people with severe mental illness about their perceptions of cancer screening, and/or their experiences of attending cancer screening.
3) Identify any similar barriers, and common facilitators, that influence decision making and uptake of people with severe mental illness and people with learning disabilities to cancer screening. This will identify group specific factors, and factors that are distinct to each group.
4) Developing a plan, to conduct a future research study to further understand how the recommendations could be implemented into practice.
It is hoped that the research will help identify ways in which the screening programmes can be more person centred based on the needs and preferences of people with severe mental illness and people with learning disabilities, which may then lead to a greater uptake in cancer screening.
What does the study involve?
The study is comprised of four phases, which are summarised in the below flowchart.
Who is part of the study team?
The core research team is comprised of 9 people (whose information can be found on the ‘Project Team’ page), as well as an advisory group which is comprised of:
- A reader from the University of York.
- A consultant psychiatrist in mental health services.
- Macmillan Project Manager for the North East and North Cumbria Learning Disability Network cancer project.
- A clinical psychologist in cancer services.
- A Senior Nurse Research Lead who is also an associate research delivery manager for the NIHR CRN North East and North Cumbria.
- A representative from NHS England and NHS Improvement.
- A representative from MIND who has completed a cancer project.
- Director of Operations for Tees, Esk and Wear Valleys NHS Foundation Trust.
- Delivery Manager at the Northern Cancer Alliance.
- Lead Nurse consultant.
- A Director of Research, Innovation and Clinical Effectiveness.
- Three general practitioners from three separate practices.
- A learning disability sexual health nurse specialist who is involved in cervical screening.
- Co-Director of the Recovery College Collective.
- Six experts by experience (three people with experience of severe mental illness in place, with three people with learning disabilities to be confirmed).
When will the research be taking place?
The research started in March 2022 and is due to end September 2023.
Who has approved and funds the peccs study?
The study has received ethical approval from Teesside University (6th June 2022). The study has received ethical approval from the Health Research Authority (HRA [REF: 310622]), as well as favourable opinion from a HRA Research Ethics Committee (REF: 22/PR/0793).
This project is funded by the National Institute for Health Research (NIHR) [Applied Research Collaboration North East and North Cumbria (NIHR200173)]. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. Funder reference: OFC2021-129. Version: 1. Date: 31/05/2022 (Funded on: 27/10/2021)
This project is funded by the National Institute for Health Research (NIHR) [Applied Research Collaboration North East and North Cumbria (NIHR200173)]. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. Funder reference: OFC2021-129. Version: 1. Date: 31/05/2022 (Funded on: 27/10/2021)
What is cancer screening?
In the United Kingdom there are three cancer screening programmes which are aimed to identify cervical, breast, and bowel cancer in people with no symptoms.
You have to be in a certain age bracket before being invited to screening:
Cervical cancer screening: 25-64 (UK)
Breast cancer screening: 50-70 (UK)
Bowel cancer screening: 60-74 (England, Wales and Northern Ireland) and 50-74 (Scotland)
If you would like to learn more about cancer screening, please see below some useful websites:
https://www.cancerresearchuk.org/about-cancer/screening
https://www.nhs.uk/conditions/cervical-screening/
https://www.nhs.uk/conditions/breast-screening-mammogram/
https://www.nhs.uk/conditions/bowel-cancer-screening/
You have to be in a certain age bracket before being invited to screening:
Cervical cancer screening: 25-64 (UK)
Breast cancer screening: 50-70 (UK)
Bowel cancer screening: 60-74 (England, Wales and Northern Ireland) and 50-74 (Scotland)
If you would like to learn more about cancer screening, please see below some useful websites:
https://www.cancerresearchuk.org/about-cancer/screening
https://www.nhs.uk/conditions/cervical-screening/
https://www.nhs.uk/conditions/breast-screening-mammogram/
https://www.nhs.uk/conditions/bowel-cancer-screening/